Cure Rare Disease, a nonprofit biotechnology research organization on a mission to develop precision medicine for rare diseases, today announced that it will hold its “Community for a Cure” annual event on June 5 to celebrate progress in developing customized therapeutics and to raise funds to support patient testing programs.
The Duffy family of Greenwich is working closely with the nonprofit biotech Cure Rare Disease to help develop a genetic treatment for their son’s rare, fatal disease. On June 5, they will be participating in the Community for a Cure fundraiser. The organization has set a goal to raise $250,000 during the hybrid in-person and virtual program, which will be the inaugural event at The Village in Stamford, Conn.
“Our annual gala is a special evening when the Cure Rare Disease family comes together to celebrate our recent progress and to demonstrate our commitment to the mission of curing rare disease,” said Rich Horgan, founder and president of Cure Rare Disease, whose brother Terry was born with DMD and will be the first person to receive the treatment later this year. “I am extremely grateful to all of our sponsors, donors and families who support and champion our work and keep us steadily on the path of progress toward our goal of saving lives.”
The gala, sponsored by Charles River Laboratories and several other companies, features a live auction with professional auctioneer Harry Santa-Olalla and an awards ceremony recognizing clinical and scientific contributions.
For more information about the gala’s sponsorship and donation opportunities, visit: https://www.cureraredisease.org/events/community-for-a-cure-2021
