Virtual 5k to support VWM Families Foundation

Join us on Rare Disease Day, February 28th, 2017, for a virtual 5K to support the VWM Families Foundation. Register to walk or run, indoor or outdoor, from wherever you are on February 28th. Within a few days of registration, each participant will receive details of a VWM patient that they are running for to inspire them while training or on the day.  T-Shirts are available for purchase at: https://www.booster.com/rare-disease-day-5k-for-vwm-v2  If you would like to collect sponsorship for the event, please feel free to set up a personal fundraiser page at: https://www.crowdrise.com/rare-disease-day-5k-for-vwm/fundraiser/vwm-familiesfoundation
Vanishing White Matter disease (VWM) is a very rare neurological condition that destroys myelin, the brain’s white matter. In doing so, it permanently affects the transmission of brain signals to the rest of the body. VWM primarily affects children and is untreatable, incurable and terminal. Money raised by the VWM Families Foundation helps fund existing research projects and supports families living with VWM.